7 04, 2015

Caregiver Time Out

Give Yourself a Caregiver Time Out to Increase Energy and Reduce Stress

caregiver-time-out.jpgWhen my friend Jeanine asked, “How do I get through life like this?”, I said, “Give yourself a caregiver time out.” Jeanine’s husband had a stroke about a year-and-a-half ago. Since then she has focused all of her time and energy on caring for him. She is now beginning to feel like a prisoner in her own home.

I told her about my friend Julia whose husband had cancer. By submitting to one treatment after another, he had outlived his prognosis by more than three years. Julia had nursed him through all of the horrendous side effects, and one day she said, “I am done putting my life on […]

1 04, 2015

Caring for a Loved One

What Matters Most When Caring for Loved One

End-of-life conversationIf you are caring for a loved one, whether it’s an aging parent, spouse, sibling or friend who needs help managing medical conditions, treatments and healthcare decisions, I highly recommend reading the book, “Being Mortal”, by Atul Gawande.

When I told a friend I was reading it, she asked, “That book is about dying, isn’t it?” I said, “No! It’s about making choices so you can stay in control of how and where you live out the final stages of your life.”

Dr. Gawande points out that the medical community tends to look at aging as a medical problem that needs to be fixed. He said, “…Our decision making in most medicine has failed so spectacularly […]

12 03, 2015

End-of-Life Planning

End-of-Life Planning
Ducks in a Row – Part 5

End-of-life planningIn this final installment of getting your “Ducks in a Row” I will be addressing the must-have end-of-life planning documents. There isn’t anything fun about this topic. I don’t like writing about it, and I’m sure you don’t particularly enjoy reading about it. If it was possible for things to just work out at the end of life, none of us would have to deal with any of this.

Unfortunately, nothing ever just works out. Just like the man in the photo, planning is most effective when you do it before you find yourself in a crisis.

If you want to keep peace within your family and avoid costly legal fees, there are three documents you […]

23 02, 2015

Go With the FLOW

Go With the Flow to
Reduce Caregiver Stress

Caregiver learns to go with the flow Learning to “go with the flow” isn’t something that comes naturally to most caregivers. It can actually feel like the first thing we should do every morning is strap on a pair of boxing gloves in order to get prepared for the numerous battles we know we’ll be facing throughout the day.

As I may have mentioned before, I like to be in control. The problem with wanting to do something to fix, change or improve any given situation is coping with your feelings of frustration and disappointment when things don’t work out.

We have to accept that there are progressive diseases for which there are no cures, and that we […]

21 02, 2015

Avoid Becoming Overwhelmed

Taking My Own Advice About Self-Care

Overwhelmed caregiver looking in the refrigeratorI frequently write about the importance of self-care and how it is the only way caregivers can avoid becoming physically and emotionally overwhelmed.

Yesterday morning as I was making soup to take to two different sets of friends who are each struggling with some serious health issues, I went to the refrigerator and drew an absolute blank after opening the door.

Speaking to myself (or so I thought) I said, “Where did I come from?”

My husband Alex, who was pouring a cup of coffee, said, “Are you asking me that question?”

I laughed and said, “No! I know where I came from. I just don’t know why I’m here.”

He said, “Huh?”

Feeling a little exasperated, I […]

19 02, 2015

Caregiver SOS Radio

Caregiver Survival Training

Caregiver SOS Radio Hosts Carol Zernail and Ron AaronI was invited to be a guest on the Caregiver SOS Radio show hosted by Carol Zernail and Ron Aaron. The show is based in San Antonio, Texas and presented by the WellMed Charitable Foundation. Carol and Ron are both engaging and entertaining hosts, and they are extremely knowledgeable about the difficult issues all caregivers face. I thoroughly enjoyed our conversation.

We talked about how editing my mother’s letters into the book, “Letters from Madelyn, Cronicles of a Caregiver” inspired my desire to help other people who are caring for loved ones who are aged, chronically ill or disabled. I also described how my mother’s “Attitude of Creative Indifference” become the foundation of […]

14 02, 2015

Accepting the Unacceptable

Developing an Attitude of Creative Indifference
Step 2: ACCEPTANCE

accepting the unacceptable challenges of caregivingAccepting the unacceptable is something most caregivers eventually have to do, especially when you’re caring for someone with a long-term progressive and degenerative disease.

But how do you come to terms with the fact that your husband, who was once a distinctive businessman or brilliant educator can no longer figure out how to write a check or look up a telephone number?

How can you accept that your wife’s Parkinson’s or Alzheimer’s Disease has progressed to the point that all of the plans you had for this time in your life are no longer possible? How do you reconcile the dreams you had with your current reality?

Yesterday I wrote about AWARENESS, which […]

13 02, 2015

Grief of Parkinson’s Disease

Developing an Attitude of Creative Indifference
Step 1: AWARENESS

caregiver grieving the impact of Parkinson's DiseaseLast night I spoke about coping with the grief of Parkinson’s Disease at a Caregivers’ Conference hosted by the OHSU Brain Institute , and sponsored in part by Parkinson’s Resources of Oregon.

Depression and grief are hard topics, and I didn’t sugar coat any of the feelings that caregivers experience as they go through the process of gradually losing someone they love to Parkinson’s Disease. There were lots of tears in the audience as I described my friend Emma’s struggle to come to terms with the impact her husband’s Parkinson’s is having on her life.

One woman stated that after […]

29 01, 2015

Make Peace with Change

Five Steps to Help Caregivers Cope with Change

Caregiver self-careCoping with change is something most caregivers have to do almost daily. Your care receiver’s health changes. The things you can still do together change. Your freedom to come and go as you please changes.

As I pondered my topic for my January article for Griswold Home Care’s “CaringTimes” Blog, it seemed that the logical choice would be to write about New Year’s resolutions focused on caregiver self-care.

As I thought about it though, I decided that the resolutions caregivers make at the beginning of the year about self-care are often long forgotten by Valentine’s Day. I have come to the conclusion that the only way we can truly keep any commitment to doing things differently […]

23 01, 2015

EPILOGUE – Letters from Madelyn

Letters from Madelyn – Epilogue
“Life After Caregiving”

Elaine and Alex Sanchez, co-founders CaregiverHelp.comIt takes some time to adjust to life after caregiving, but as impossible as it seems, life will go on.

Several years ago I heard a sermon that really got my attention. The minister said, “You never know where you are in your life story. You may be close to the beginning. You may be somewhere in the middle, or you may be very, very close to the end.”

When I wrote the original epilogue to “Letters from Madelyn” in 2007, I had no idea that I would end up developing a new career speaking and writing about caregiving. I would have never guessed that Alex and I would create CaregiverHelp.com, our video-based […]

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