4 10, 2014

– EMPATHIZE –
Caregiver Word of the Day

IMG_1026My friend Helen’s mother has Alzheimer’s. One morning Margaret called Helen in a panic and said, “All of my money is gone! My bank account is has been emptied out and I’m completely broke.”

Helen calmly explained to her mother that she was confused. She said, “I’m managing your money, Mother. I pay all your bills, and you still have have lots of money in the bank.” The more she tried to explain the more upset Margaret became. The next morning Margaret called again crying that all of her money had been stolen. This went on for days before Helen called me.

I suggested Helen respond to her mother as if the situation was real. So the next morning when Margaret […]

3 10, 2014

– MOOD –
Caregiver Word of the Day

IMG_0339When you enter a room, you bring your energy with you. People with dementia are sensitive to other people’s moods. If you are feeling happy, positive and cheerful, they will respond to that. If you feeling rushed, cranky or resentful, they will also react to that.

One of the easiest ways to change a mood is with music. Music memories are stored in a different part of the brain than language. People who haven’t spoken in a long time will often sing along when they hear a familiar song.

Go online and figure out what songs were popular when your care receiver was in his/her teens, twenties and thirties. If they sang in a church choir, search for timeless and familiar […]

2 10, 2014

– LANGUAGE –
Caregiver Word of the Day

IMG_1143It helps to remember that Alzheimer’s impacts a person’s ability to process language. In order to reduce frustration for them (and for you), avoid giving complicated directions. Speak slowly and use sentences that have seven or fewer words.

Communicating in this manner takes more time. It takes a lot of patience. But if you can use simple language and pause in between short statements, it will help them understand the message you’re trying to convey. It will lessen their anxiety, and you’ll probably have more success in getting them to cooperate.

Just imagine how you’d feel if someone you didn’t know barged into your house and started talking rapidly in a language you didn’t understand. I don’t know about you, but […]

1 10, 2014

– DON’T –
Caregiver Word of the Day

IMG_1136Over the course of the next several days I’m going to be sharing some strategies that can help improve communication and cooperation while caring for someone who has Alzheimer’s or other dementia-related diseases.

Today I’m starting with the Three DON’TS of Dementia:

1. Don’t argue. You will not win. Arguing will just make them more agitated and upset.

2. Don’t try to talk them out of it. Rationalizing and reasoning will not work. Whatever they are experiencing in the current moment is as real to them as your reality is to you. Trying to convince them otherwise is futile, and it will leave both of you upset and frustrated.

3. Don’t pressure them to remember. They can’t. Alzheimer’s is a thief that […]

30 09, 2014

– REALITY –
Caregiver Word of the Day

IMG_1418My friend Dorothy Tucker worked as a nurse in nursing homes for 30 years. She especially loved working with people who had Alzheimer’s and other dementia-related diseases. She said the trick to keeping them peaceful and happy was to join them wherever they were in their own reality.

Every day when she left to go to work she believed with her entire being that she was a nurse who worked in a nursing home and helped care for people with Alzheimer’s and other dementia-related diseases. However, during the course of the day the residents could see her as 15 to 20 different people. Sometimes she was a mother, a sister or an auntie. Sometimes she was a friend from school. Other […]

23 09, 2014

– REMEMBER –
Caregiver Word of the Day

IMG_1420Tears sprang to my eyes yesterday when I saw Ann Chamberlain peeking through the door into our church’s sanctuary. For decades Ann, an unpaid volunteer, kept everything and everyone in order at St. Paul’s Episcopal Church.

Yesterday she looked fragile and confused. It’s clear that Alzheimer’s has punctuated her mind with holes and spaces that she can no longer connect.

As I looked at her yesterday, I remembered how she used to walk quietly and quickly in her immaculately tailored outfits. A point of her finger or the nod of her head would silently direct acolytes, priests and parishioners. She always knew what needed to be done and exactly how to do it. She brought comfort when she prayed with us […]

22 09, 2014

– FUN –
Caregiver Word of the Day

I had a lot of fun last week when I got to speak at two caregiver events sponsored by The Kensington, a beautiful new assisted living/memory care facility in Sierra Madre, California.
Although I’d only been on a speaking hiatus for three months while caring for my husband through his back surgery, I felt like I’d been away for a really long time.

I had great fun meeting new people, visiting with family and professional caregivers and sharing my favorite stories, including the one about the “Avis Affair”.

Our family didn’t know about stroke-related dementia when my dad asked my mother to arrange a sex date for him with the girl he’d taken to his high school senior prom in 1938. Dad’s obsession with Avis went on for months. None […]

22 09, 2014

– PATH –
Caregiver Word of the Day

IMG_1415I’m sitting in the Portland airport waiting for my flight to California today. Tomorrow I’ll be speaking at an event for family and professional caregivers sponsored by The Kensington, a gorgeous new assisted living/memory care facility.

As I look at all of the people in the airport and think about the individuals who will be attending the event tomorrow, I am struck by the fact that as much as we may all have in common as living, breathing human beings, each person is on his/her own unique path.

If you follow my blog, there’s a pretty good chance you’re a caregiver. You probably know where your path is taking you today. Your destination tomorrow, next week, and next year may not […]

20 09, 2014

– ITCH –
Caregiver Word of the Day

OLYMPUS DIGITAL CAMERAI have a new itch that just has to be scratched. I’ve been thinking about writing a play for a number of years, and recently scenes from it have started waking me up in the early morning hours whispering, “It’s time. Write me!”

I have learned if I don’t listen to the voices in my head when they are whispers that they eventually they turn into screams that will not let me rest. So for the next few months my “Word of the Day” will be “encore” posts. I will also be upgrading and increasing the content on our website, CaregiverHelp.com, so please be sure to visit there if you are in need of more information or support.

Even though […]

17 09, 2014

– DOTS –
Caregiver Word of the Day

IMG_1404I am a huge Apple fan. My husband finally understood the depth of my love for him one day when I declared, “Alex, I love you more than my Mac!”

I admired Steve Jobs for his genius and innovative spirit, but more than anything, I respected him for never giving up. In a commencement speech he gave at Stanford University in 2005, he talked about “connecting the dots” and seeing the opportunities in all of life’s setbacks, including death.

He said, “You can’t connect the dots looking forward; you can only connect them looking backwards. So you have to trust that the dots will somehow connect in your future. You have to trust in something — your gut, destiny, life, karma, whatever. […]

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